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Sarah Halstead

You are here: Home | Family | Hip Update

December 13, 2012 By Sarah Halstead

Hip Update

Filed Under: Family, Special Needs Tagged With: carsyn, cerebral palsy, Holoprosencephaly

Well last time we had Carsyn’s hip x-ray done his right hip was about 30% uncovered. This time his right hip was about 40-50% uncovered and his left hip was about 30% uncovered. Not good!! So we are scheduling an appointment with an orthopedic surgeon to see about doing some muscle releasing surgery in his hip areas. Should keep him from scissoring his legs and hopefully will keep his hips from coming out of socket.

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I really have mixed feelings about the surgery. She said the orthopedic may say to just wait on the surgery for now which would be great because I really do not want Carsyn to have to have surgery. On the other hand the surgery would be helpful so that he wouldn’t scissor his legs. Plus it could free up some of the botox he is allowed, to be used in other parts of his body. His botox is scheduled for February sometime before then we will need to figure out if he is going to have the surgery or not. Please pray that the doctors and I make the right decision for Carsyn.

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He did get an increased dosage of baclofen that she hopes will help his arm muscles and his tight hamstrings. We will see how that goes. It will now be in pill form so I will have to crush it and give it to him. Anyone have advise on the best way to do this? I want to make sure he gets it all so not sure how I should get him to take the crushed pill.

Also he has another ear infection. They gave him antibiotics. Hopefully it will clear up quickly. Could explain why he hasn’t been sleeping well. I just hope this isn’t becoming a regular thing. Poor guy has enough to deal with!

In good news he is doing awesome in his gait trainer but I really need to get him to use his swash so that he doesn’t scissor in his gait trainer. He also really needs to wear his AFO’s. Right now he doesn’t want to move if I put his AFO’s or his swash on. We will need to work on that, and getting him more stander time to hopefully prevent him from having to have surgery.

That is what is going on in my life along with everything else I am working on plus Christmas. Oy! It is going to be a busy end of the year!

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Comments

  1. Katherines Corner says

    December 13, 2012 at 9:05 pm

    I'm sorry to read you had disappointing news, I will read the other post for the details. That's awesome about Pear Tree they have some great stuff. Thank you for sharing at the hop xo
  2. Yona says

    December 13, 2012 at 1:51 pm

    Congrats on becoming a Pearista! hope you are able to raise money for the conference! I'm stopping by from Katherine's Corner blog hop. Happy Favorite Things Thursday! http://artpark78.com/blog1/i-made-my-2012-holiday-wreath/
  3. [email protected] a sorta fairytale says

    December 13, 2012 at 10:44 am

    Ah! I don't know what happened but my last comment got submitted before I was done! I was going to say that I am sorry to hear the news about Carsyn! I'm keeping you all in my prayers and hoping he can avoid surgery! xoxo
  4. [email protected] a sorta fairytale says

    December 13, 2012 at 10:41 am

    Pear Tree Greetings contacted me about being a Pearista as well but I decided against it. Now, you have me questioning my decision. LOL. Hope you raise lots of money for BlissDom! :)
  5. Mama Monkey says

    December 13, 2012 at 10:01 am

    I can't keep up with you! I searched for Naptime Momtog and you changed your name!!! So sorry to hear about Carsyn's hip :( I just received a Christmas card from Pear Tree--they are beautiful!!!
  6. Kim C. says

    December 13, 2012 at 9:06 am

    So sorry about the hip news. Poor little guy and mama! Will be praying for this. Will try to help get the word out about your headers and buttons!
  7. Robyn says

    December 13, 2012 at 8:33 am

    Sarah, Unpredictability is the spice of life! I honestly think God gives us what we can handle and helps us through the trying times. Good Luck to you and thinking of your family.
  8. Tamar Strauss-Benjamin says

    December 13, 2012 at 8:18 am

    So sorry yo hear you didn't get the news you were hoping for - but that smile, oy melt my heart!!

Welcome

I'm Sarah and I am the writer behind this blog. I love sharing recipes, DIY projects, photos and about my everyday life. I married my high school sweetheart Kenny. We have three boys and one baby girl - Dustyn, Carsyn, Prestyn, and Annelyn. Thanks for stopping by, can't wait to get to know you more. Read More…

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