It feels like it has been forever since I have done a Carsyn update. So here is the run down.
He is still in Physical Therapy once a week and Occupational Therapy once a week. They are still waiting on Speech Therapy because he is making some progress in this area right now.
Insurance finally approved the stroller and stander. We should be getting those items in the next month. We will be able to give his loaner stander back to his Early Intervention place. The stroller is basically like a wheelchair. It gives him the extra support he needs for long rides. The stander gives him the time he needs to practice weight bearing. This will help him grow. Since normal kids his age are standing and walking. Once he starts trying to take steps they will move him up to a walker.
Both his PT and OT are so amazed by his progress. To me it seems like he is moving so slow and it takes him forever to learn something new, but they think he is doing great. I love hearing that.
He is still so happy all the time. He brings a smile to anyone’s face that he meets. I love it.
According to his Neurologist, this is a seizure. {My Opinion, I know I am not a doctor, is he had something itchy/stuck in the back of his throat. We were eating breakfast and he started doing that. It lasted for a minute or so. Then I gave him some drink and he was fine} He wants to do another EEG, but if he is not having a seizure at the time of the EEG it will just show up normal. If it does show up normal, then he just wants us to wait and see if we see another seizure. It just frustrates me. How do they expect to accurately know if he is having seizures without doing a test longer then an hour. It has been two weeks and I have not seen any signs of seizures. He said the type of seizure he thought it was, should be happening very frequently. It just seems like he is out to make money. I think we will be looking for a new neurologist soon.
Anyways if you can just keep him, Dustyn, Kenny and I in your prayers. We are just trying to take everything one day at a time. It is difficult though.
{Taken with my iPhone while driving down my driveway. ha ha.}
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