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Sarah Halstead

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Update on Carsyn

Filed Under: Family, Photography

They came today to go over his evaluation results. He is at least 33% behind in all areas. In fine motor skills he is at a 4 month level. So I was right about him not developing since 4 months. He has been at a stand still. She feels that it is because he has Hypertonicity, which means that he has increased muscle tone. I am really trying not to look into this or jump to conclusions. Of course I had to google it, which I know is bad. Hypertonicity is one of the major signs of cerebral palsey. I am praying and trusting in the Lord. If it is cerebral palsey, I will still love him and do everything in my power to help him. I will be an advocate for my son. No matter what it takes.

I am going to call my doctor tomorrow because I want to have him tested, but we don’t have an appointment until March 17th. I am hoping they will tell me what I need to do. If not I am going straight to the Children’s hospital. I still may do that. We will see. As far as the Early Intervention, they will be coming once a week for occupational and probably physical therapy too. It will be two different people and agencies doing them. I am ready to get started and get some answers.

I really thought I would feel better after today, but I feel worse. Looking at this face makes me feel blessed though.

I do want to say thanks again for all your sweet words, encouragement and prayers. You all really mean so much to me.

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Comments

  2. Dawn says

    Hang in there! I'm so thankful you have the services and medical team available to you (even if you have to wait a few weeks). Like others have said, if that is the diagnosis, it could be just a mild case and with therapy he could be just fine! I did the freak-yourself-out-with-Google thing a few months ago with my youngest, actually coming to the same conclusion that you did with CP. I was totally convinced for a while...and it turns out she's fine (well, she is still delayed but her doctor's not worried about it unless she stops making progress). She didn't sit reliably until about a year old. Just to assure you that sometimes we moms jump to these conclusions and it turns out to be not true. God has good plans for your family!

  3. Erin @wildlifebio says

    Best wishes to you and of course Carson. I hope that you get answers and I hope that the early intervention works wonderfully. I think I have told you this before but everytime I read one of your posts I am reminded - you are an awesome mom and Carson is very lucky to have you as his mom and advocate. Hugs to you and your whole family.

  5. Carrie Harmsen says

    Carsyn is an adorable sweetie pie! What a lucky boy to have such a strong mama advocating for him! (Hugs) I know you're scared, but everything will be alright - no matter the outcome.

  6. Tracy says

    Oh, I know this wasn't the news you were wanting, but God doesn't make mistakes so Carsyn is perfect and part of a perfect plan no matter the results and he is with the right family. I will continue to pray for you and that GORGEOUS little man. Don't let Google suck you in or pull you down. HUGS!!

  7. Natalie says

    I will keep you in my prayers! I hope for the best and you are such a great mother for him to have Sarah! *Hugs*

  8. Angee says

    Google can be such a double edged sword. Just keep in mind that a lot of us have low or high muscle tone and it's no big deal. I hope you see quick results with therapy and get the answers you're looking for with the doctors. Talk to your EI caseworker about connecting with other parents in the program or look into Parent to Parent. You'll get a lot of great information from other moms. It's much better than google. But that being said I totally googled today because I'm littlest one's head is small. All it did was make me worry :(

  9. Angela says

    I will continue praying for the best for you all! He is such an adorable little boy and is lucky to have such a devoted, attentive mother. If I can help in any way, just let me know. Thinking of you all...

  10. Jessi says

    I'm so sorry you are going through this. I know it's heart breaking. At least, you do have information now and can start moving forward to the next step. Your in my prayers!

  13. Karli says

    Oh Sarah...I'm so sorry for this bit of news. (Thank you so much for sending me the link). I will be praying like CRAZY for Carsyn. I can't imagine how agonizing the wait is; really March 17th? Oh goodness. I will keep your family in prayer. What a gorgeous baby...love your swing pictures. Sending prayers your way! XOXO

  14. Sarah P. says

    Oh, Sarah, I'm so sorry to hear this. Poor guy. I can only imagine what you're going through. You want everything to be perfect for your child and it's hard when something goes wrong. You'll get through it and he's still the same, sweet little boy but now he just needs a little more help. I'm thinking of you and your family and praying for nothing but good things.

  17. Reading Allowed says

    Gosh he's adorable. I'm so sorry you're dealing with all this worry right now, but lucky Carsyn to have a mom who loves him so much and will be his advocate. Stay strong and please keep us posted.

  21. Candice says

    I hope Carsyn doesn't have CP, but if he does, it doesn't have to be a big deal. My brother has mild CP. He attended physical therapy as a child and was able to play sports: football, swimming, and baseball - plus he ran around with all the other kids and no one would know anything was different about him. Now, he's 28 and a lawyer. He's tall, brilliant, handsome, and popular - basically a Lawyer Ken doll come to life. CP does not have to be a terrible diagnosis. So whatever turns out, just hang in there and have faith. He is still precious and wonderful and you are doing a great job of making sure he gets what he needs.

  22. marcip says

    Ya'll are in my prayers. I hope you find definite answers soon. Carsyn is so lucky to have such loving and capable parents!!

  23. WeeMason's Mom says

    Girl, you gotta back away from Google. Seriously, NO ONE logs onto the internet to write about minor health issues or how their scare was nothing - they write when they had the worst possible scenario happen. The internet is filled with nothing but worst case scenarios and worst possible events and rarely any "we had these symptoms and it was nothing!" That's why you can google pimple and determine you are two weeks from dying of cancer. Block google from your computer, NOW. And beyond that, massive hugs. If I were in your shoes, I would totally be going to Children's Hospital now if it means you don't have to wait another month plus for more answers. That's just way too long and I'd be totally torturing myself the entire time. I'd much rather have a long drive than a long wait. But that's just me. We support you in whatever decision you make on that and are sending lots and lots of good thoughts!!!

  27. Brandi says

    Your son is beautiful. Be glad for the therapies, they are a blessing. My son was denied but we are getting private therapy for now. I know all about becoming an advocate. You son is lucky to have such a good mommy. I google too and know I shouldn't...

  29. Lori@ Teacher Turned Mommy says

    EI is a great service. Getting to be there with him for his therapy sessions gives you more of an understanding of what they are doing to help him progress and you can do some of the activities on your own too. Hope you can get some answers as to the cause

  30. Carolina says

    I will keep your little man in my prayers that it's a fluke and that he is totally healthy! *HUGS* He is so sweet, I love those cheeks. I just want to kiss em!

  33. Meg :) says

    Sarah, these pictures of Carsyn are so sweet! Try and get some rest in the meantime. We're all praying for you and Carsyn and your family. :)

  37. Andie says

    Not saying what you Googled isn't true, but you are going to scare the crap out of yourself, girl! I had a friend with the same issue with muscle tone and her son is fine. He's almost four. I wish I could hug you both. I can only imagine what you are going through. I know it's easier said than done, but sleep tight and let God do his handy work on your sweet baby. You guys will continue to be in my thoughts and prayers.

  39. Mama P says

    He is such a cutey!, I will be praying for mr. Caryson, my 2 year old is behind in many areas as well, we have the ocupational therapist, speech, behaviorlist, and the early intervention specialist, I totally can understand how your feeling, I've been there, Heck I'm still there, if you ever need to talk, Im here :)

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