Random Post Alert.
Carsyn’s wheelchair parts are still not in, but hopefully this week. Then they have to put it together. Which I pray happens next week. I am sooooo ready to get his chair.
He got fitted for a new Gait Trainer on Monday. He tried out the Rifton Pacer and the Kid Walk. I really, really, really wanted him to try out the Kid Walk because I have heard great things about it. Plus it has big wheels like his wheelchair will have, so if he gets used to steering his wheelchair he could also steer his Kid Walk like that if he needed to. I also love the fact that he can walk right up to toy kitchens and tables just like any other kid.
Once his wheelchair is in they will also be fitting him for a new Stander. He has gone through several growth spurts recently which is awesome, but not awesome for his poor hamstrings. He is way overdue for Botox injections in his hamstrings and hips. The new doctor we met is trying her hardest to get it set up, but she has had to jump through a lot of hoops. I do like that he has to get all new equipment at the same time because that means we will meet our deductible early this year. The wheelchair took care of most of that…. I don’t like spending the money, but I would rather meet our deductible at the beginning of the year then at the end.
For some reason Carsyn has been really fussy when dropping him off at school. Then also during school. That isn’t really like him so I am not sure what is going on. I am thinking maybe another growth spurt and it is painful on his muscles?
Dustyn will be going for his sensory processing/aspergers evaluation in April. I am ready for that to be over with, but also nervous about the results. I want to know if there is really something going on with him.
I did call the doctor today to see if he could see him and make a referral for a sleep study. I have been noticing lately that Dustyn is snoring a lot and very loudly at night. He is also taking pauses between breaths. I immediately went to worst case scenario, sleep apnea. Which I have read can cause behavioral problems and hyper activity. Honestly if he does have sleep apnea, that could be the reason for some of his other problems.
Can not even believe he will be 6 years old on Friday! Eeekkk! I am still working on his birthday post. I hope to get that up tomorrow!
I updated my header and buttons simply because I am ready for Spring. I wanted something cheery and beautiful. What do you think of the new look?
Is there anything in particular you would like to see me blog about? I love to hear feedback from my awesome readers.