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Sarah Halstead

You are here: Home | Family | Streaming Thoughts

February 26, 2014 By Sarah Halstead

Streaming Thoughts

Filed Under: Family, Special Needs Tagged With: carsyn, cerebral palsy, Holoprosencephaly, special needs

Random Post Alert.

Carsyn Updates

Carsyn’s wheelchair parts are still not in, but hopefully this week. Then they have to put it together. Which I pray happens next week. I am sooooo ready to get his chair.

He got fitted for a new Gait Trainer on Monday. He tried out the Rifton Pacer and the Kid Walk. I really, really, really wanted him to try out the Kid Walk because I have heard great things about it. Plus it has big wheels like his wheelchair will have, so if he gets used to steering his wheelchair he could also steer his Kid Walk like that if he needed to. I also love the fact that he can walk right up to toy kitchens and tables just like any other kid.

Once his wheelchair is in they will also be fitting him for a new Stander. He has gone through several growth spurts recently which is awesome, but not awesome for his poor hamstrings. He is way overdue for Botox injections in his hamstrings and hips. The new doctor we met is trying her hardest to get it set up, but she has had to jump through a lot of hoops. I do like that he has to get all new equipment at the same time because that means we will meet our deductible early this year. The wheelchair took care of most of that…. I don’t like spending the money, but I would rather meet our deductible at the beginning of the year then at the end.

For some reason Carsyn has been really fussy when dropping him off at school. Then also during school. That isn’t really like him so I am not sure what is going on. I am thinking maybe another growth spurt and it is painful on his muscles?

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Dustyn Updates

Dustyn will be going for his sensory processing/aspergers evaluation in April. I am ready for that to be over with, but also nervous about the results. I want to know if there is really something going on with him.

I did call the doctor today to see if he could see him and make a referral for a sleep study. I have been noticing lately that Dustyn is snoring a lot and very loudly at night. He is also taking pauses between breaths. I immediately went to worst case scenario, sleep apnea. Which I have read can cause behavioral problems and hyper activity. Honestly if he does have sleep apnea, that could be the reason for some of his other problems.

Can not even believe he will be 6 years old on Friday! Eeekkk! I am still working on his birthday post. I hope to get that up tomorrow!

DSC_6623Blog Updates

I updated my header and buttons simply because I am ready for Spring. I wanted something cheery and beautiful. What do you think of the new look?

Is there anything in particular you would like to see me blog about? I love to hear feedback from my awesome readers.

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Comments

  1. Shannon says

    March 4, 2014 at 2:47 pm

    I am amazed at your lovely pictures. I love them.
    • Sarah says

      March 9, 2014 at 9:32 pm

      Thank you Shannon.
  2. Shannon says

    March 1, 2014 at 4:34 pm

    I am loving the new header. It is super fun and makes me think of Spring.
    • Sarah says

      March 3, 2014 at 4:07 pm

      Thank you so much!
  3. Ida says

    February 28, 2014 at 8:31 pm

    Your new header is nice. Spring flowers are a cheery edition. Good news about Carsyn and his chair and walker. I do hope both boys will do okay with their tests and such. They both seem like sweet children.
    • Sarah says

      March 3, 2014 at 4:08 pm

      Thanks so much Ida.
  4. Pam@over50feeling40 says

    February 27, 2014 at 1:04 pm

    Thanks for your openness and willingness to share your story on the Thursday Blog Hop. I know it will help others walking through similar circumstances.
    • Sarah says

      March 3, 2014 at 4:08 pm

      Thank you!
  5. Shannon says

    February 27, 2014 at 3:31 am

    Your kids are so cute. Aww I was hoping that Carsyn's wheelchair would have been ready by now.
    • Sarah says

      February 27, 2014 at 7:37 am

      Thank you so much! Me too. The lady I have been communicating told me all the parts were in last week, but ended up only the seat belt was in. So we wait...

Welcome

I'm Sarah and I am the writer behind this blog. I love sharing recipes, DIY projects, photos and about my everyday life. I married my high school sweetheart Kenny. We have three boys and one baby girl - Dustyn, Carsyn, Prestyn, and Annelyn. Thanks for stopping by, can't wait to get to know you more. Read More…

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Prestyn’s last day vs first day. Another one tha Prestyn’s last day vs first day. Another one that needs a hair cut and he has been bugging me about it. 🤣 Didn’t really notice how long it was until I compared it to the other photo. Prestyn had a great year and has made some amazing friends. He can’t wait to start 2nd grade next year.

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Carsyn’s last day of school vs first day of scho Carsyn’s last day of school vs first day of school. He desperately needs a hair cut but I love the messy look. He’s grown so much this year. Carsyn went through a rough time at school, losing his best friend in the classroom, and losing one of his favorite teachers but he has done amazing adjusting.

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Our last and final Pre-K graduate. Don’t mind me Our last and final Pre-K graduate. Don’t mind me over here bawling. 😭

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An overview of our trip to Myrtle Beach. I took Dustyn, Prestyn and Annie with Kenny’s mom. Kenny, Carsyn, Mocha, Pumpkin, and Salem enjoyed a peace and quiet vacation at home.
Since the bounce stayed an extra day we had to tak Since the bounce stayed an extra day we had to take a few photos with it too. She had so much fun bouncing and sliding with her friends.
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Another round of pictures coming up because I couldn’t narrow it down to 10. She makes the best faces. 🥰
Annelyn had a great unicorn birthday party yesterd Annelyn had a great unicorn birthday party yesterday. She wanted the same theme as last year, which made it easy. The main thing she asked for was a unicorn bounce house.

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