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Sarah Halstead

You are here: Home | Family | Never-Ending Appointments

September 24, 2013 By Sarah Halstead

Never-Ending Appointments

Filed Under: Family, Parenting, Special Needs Tagged With: cerebral palsy, Holoprosencephaly

If you follow me on instagram then you know we spent all last Wednesday over at Duke. Carsyn had three appointments at the Cerebral Palsy clinic. They upped his prescriptions, which have made him very sleepy lately so I may have to go back down. He also got botox injections in his hamstrings and hip abductors. These injections should help with his scissoring and stretching. He has been getting these every 4 to 6 months. This time went much better because I took Carsyn to a different doctor. He has really loosened up in his hamstrings. He was SO tight you couldn’t do much stretching with out him screaming. I like to see him smiling, not screaming.

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Dustyn is still doing amazing in school. I can not believe how much he has learned already. He has also been pushing our buttons and testing his limits a lot! I love him so much, but I have been getting very frustrated with him lately. Dustyn sure is cute, even if he does get on my nerves every now and then. fbDSC_2604

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Comments

  1. Karli says

    September 29, 2013 at 8:01 pm

    I can't believe how big your boys are getting! When I saw the video the other day of Carsyn on IG, I literally got tears in my eyes. What a precious boy. And so glad D is doing great in school! Did he start Kindergarten this year? I can't believe TT starts next year. Crazy how fast time goes. Have a wonderful week! xoxo
  2. Mindi Stavish says

    September 26, 2013 at 12:12 am

    Sweet photos! Glad to hear C's appointments went well. Ugh Xander pushes buttons all the time. I was kind of hoping 5 was going to be easier than 4!! He was a pretty even keeled 2 and 3 year old but then once he turned 4 it was all down hill!
  3. Amy @ Cheeky Cocoa Beans says

    September 25, 2013 at 12:19 pm

    I've told my kids during...ummm...trying times when I'm trying to be a little lighthearted with them in spite of circumstances, "It's a good thing you're so cute." Apparently I've also finished that thought at least once, because a couple of years ago, I said to my youngest (probably 4 at the time), "it's a good thing you're so cute, or..." and prompted her to finish the sentence. Her response? Without skipping a beat, she said, "...Or you'd have thrown me out long ago!" LOL (Again, being lighthearted and silly...)
  4. Gina says

    September 25, 2013 at 9:43 am

    My goodness Sarah- they are getting so big. These are the testing years- I can tell you that it does change as they get older. They get more helpful - at least until the teen years arrive :) hehehehe
  5. Kristy, Life-n-Reflection says

    September 25, 2013 at 8:39 am

    What are mothers for but test boundaries, right? You have such a big heart :)
  6. Southern Gal says

    September 25, 2013 at 6:34 am

    Ah, they do know how to push buttons, don't they? They are so cute, though. ;) I said a prayer for you!
  7. Katherines Corner says

    September 25, 2013 at 4:14 am

    So nice to get this wonderful update. Great photos of your boys too. XOXO
  8. RaD says

    September 25, 2013 at 1:36 am

    :) They all do the testing. Unfortunately it seems to be at the most inopportune times. My kiddos are 11 1/2 and 10 right now and the oldest just started middle school. The last few weeks have not been so bad but the week prior, well, let's just say I'm glad grounding him works to get the point across. My daughter, the younger one, has been a dream this past week. I'm scared to get too comfortable though! LOL!
  9. @PamelaMKramer - A Renaissance Woman says

    September 24, 2013 at 11:52 pm

    That's a lot to deal with. You have a really great capture through those trees though. Sorry but it's just good. :)
  10. Lolli @ Better in Bulk says

    September 24, 2013 at 10:17 pm

    Boy, do I know what you mean about pushing buttons and testing limits. It's good to remind yourself that you love 'em, right?
  11. Tammi @ My Organized Chaos says

    September 24, 2013 at 10:17 pm

    Awe, hard week for you all. So sorry, but happy for the second part of the post, you seem to have the attitude to count blessings and milestones.

Welcome

I'm Sarah and I am the writer behind this blog. I love sharing recipes, DIY projects, photos and about my everyday life. I married my high school sweetheart Kenny. We have three boys and one baby girl - Dustyn, Carsyn, Prestyn, and Annelyn. Thanks for stopping by, can't wait to get to know you more. Read More…

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