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Sarah Halstead

You are here: Home | Family | Neurologist Appointment

March 14, 2011 By Sarah Halstead

Neurologist Appointment

Filed Under: Family, Photography

Carsyn did sooo good today. We had to wake him up at 5am feed him and leave by 530. He slept the whole 2 hours it took to drive there and to find the right building. Ha ha! Anyways they get there and check his weight, height and head circumference. He weighed 17lbs 4oz, 2 months ago he was 15lbs 9oz. Glad he gained some weight. He was measured at 27inches long and 2 months ago he was 25 1/2inches. Not sure of his exact head circumference. Then we wait for the neurologist to come in.


He did some different test with Carsyn, checking his eyes, reflexes, muscle tone, etc. All the while asking questions. I told him about the car accident, the being induced {not working}, then being induced again. Told him about the big bruise on Carsyn’s face and the oxygen he needed after he was born. Also told him about Carsyn’s Jaundice and our hospital stay. He then asked if his pediatrician had said anything about his head size. I said, yes and that she wanted to keep an eye on it but was not worried. Next he goes on to measure our heads. Saying we have normal sized heads, but Carsyn’s is very small for his age.

Then he pauses and writes down a bunch of stuff. Turns to me and says he is definitely developmentally delayed. Saying that he is really not far behind, but is delayed. He also says that Carsyn’s head size is concerning enough to order an MRI to find out where his brain is damaged. He also wanted Chromosome blood work done. He says that whatever happened, it happened in utero because of his head size. Whether it was a malformation or he didn’t get enough blood. I didn’t ask and not sure if he would be able to tell if it was from the car accident or not.

I asked if he thought it was cerebral palsy. He said he doesn’t want to label him yet, without further testing. He also said it won’t change anything. Whether it is CP or just some brain damage. He also said that hypertonicity doesn’t necessarily always mean CP. He said there is such a wide range of CP and that, if he just walked with a limp on his left side then it wouldn’t really matter. He felt that Carsyn’s high muscle tone in his arms were not that bad. Which I can tell a difference with that too. His legs are really tight though. He also said that cognitively Carsyn is hardly behind, so that is good. He said over all Carsyn looks great and to keep up with the occupational and physical therapy.

So after our appointment with him we went to the main hospital to have his blood taken. They actually took it from his arm. 2 whole vials. I had to hold him so tight and still while he was screaming. Worse thing ever. Poor guy, I was crying with him. After they were done, he was right back to being happy. They even gave him a teddy bear! 🙂 That blood work will take 4-6 weeks to come back. His actual MRI is now scheduled for April 19th and his follow up will be April 26th. We won’t know anything till then. It is a long waiting game, but I really am okay with this. Like he said, it really won’t make a difference in what we are doing. I am just going to keep on working with him. I am so happy that I am getting him the help he need.

Sorry this is so long. I want to write it down while it is still fresh so that I can remember it. If you stuck with me through this whole story, thank you! I am sending you a HUGE hug! Hope you have a great weekend. Thank you again for all your thoughts, prayers, emails. They mean the world to me.

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Comments

  1. Jean says

    March 20, 2011 at 9:00 pm

    Been thinking about you and Carsyn. Hoping you can get some answers from the bloodwork and MRI they will be doing. You're in my thoughts and prayers. He's such a cutie pie!!
  2. Erin says

    March 19, 2011 at 11:39 am

    It sounds like overall the appointment went well. I hope maybe it eased your mind a little. And I agree you are doing everything you need to be doing now and waiting shouldn't make much of a difference. But I know it must be hard to wait. I'm thinking about you all and saying prayers for little Carsyn.
  3. Tiffany Rhodes says

    March 16, 2011 at 7:41 pm

    You guys are being such a huge advocate for Carsyn! You deserves great, big hugs! He is very lucky to have two great parents who are being such great advocates.
    • Tiffany Rhodes says

      March 16, 2011 at 7:43 pm

      Deserve* haha
  4. Sarah P. says

    March 16, 2011 at 7:09 pm

    Glad to see an update on little Carsyn. I was just going to ask you about him. I'm so glad that you are ok with all that is going on, I can't imagine how stressful all of this has been and am so glad you've found peace. I will continue to keep you all in my thoughts and prayers.
  5. Branson says

    March 16, 2011 at 4:47 pm

    The waiting is often the hardest part when it comes to all this doctor stuff. I will definitely keep praying for you guys! Glad forward progress is being made...
  6. Janell H. says

    March 16, 2011 at 2:14 pm

    Praying for you and your family!
  7. Adeena says

    March 16, 2011 at 10:10 am

    I'm glad your appt. went well. Sounds like a great doctor! :D And you know, my oldest daughter had a small head. I had to take her in for regular check-ups. Her soft-spots closed when she was only a couple months old. After the first year, it was fine. Her head is normal-size now. :)
  8. SarahinSC says

    March 16, 2011 at 8:03 am

    I'm glad you mentioned this update on your vlog. Somehow, I missed it. You are doing a great job of doing everything Carsyn needs. Keep up the good work and be sure to take some time for yourself!
  9. Angee says

    March 16, 2011 at 8:27 am

    I'm glad your appointment went well. I hope time flies by for you and his next appointment is here before you know it. Hugs!
  10. Erika B says

    March 16, 2011 at 2:59 am

    So glad the appointment went well but sorry to hear about the bloodwork. Poor little guy! All that waiting must be so hard on you but Carsyn just looks so beautiful and healthy. Our youngest has a special need so of and on we see quite a lot of hospitals too. Sending you warm thoughts. Erika B
  11. Melissa says

    March 16, 2011 at 12:20 am

    It takes a lot of strength to deal with all of this. I am sure you know you are not alone.....you are a great mommy and have such a great attitude :)
  12. kellyk says

    March 15, 2011 at 10:55 pm

    HUGE hugs to you. The words 'brain damage' make my heart ache. I really don't have the right words to say, but just know that I am keeping you and your family in my thoughts. He is so adorable. You sound strong. I'm sure it will be nice to get some more answers next month.
  13. [email protected] says

    March 15, 2011 at 9:32 pm

    I hope you receive some more answers soon! Regardless of how things turn out, he's so lucky to have you as a Mama. It's so apparent how much you love & adore you boys. My thoughts & prayers are with you and your family! xoxo
  14. Michelle Ayers says

    March 15, 2011 at 5:37 pm

    I am sending you hugs!
  15. Rachel-Wildflower Photography says

    March 15, 2011 at 4:38 pm

    Oh goodness me...just look at his sweet face! :) Sending lots of prayers your way! Hugs to you, friend!
  16. julie says

    March 15, 2011 at 4:23 pm

    Such a sweet picture (still LOVE that hat!!) Sending a HUGE hug your way :)
  17. Andie says

    March 15, 2011 at 4:11 pm

    Aw, that's so sad, but also very good news for you guys. I am sending you and Carsyn lots of cyber hugs. By looking at him, you can't tell anything is wrong. He is such a happy baby. He loves you so much, Sarah. Just stay strong and remember that no matter what happens this little guy will always be a blessing. I'm praying for a good outcome for you and your family. Andie
  18. Shannon says

    March 15, 2011 at 5:08 pm

    Glad you got *some* answers. I'm thinking about you and your whole family. He's just such a cutie and a blessing. :)
  19. Dina @ 4 Lettre Words says

    March 15, 2011 at 2:52 pm

    Luke had to have blood taken from his arm twice when he was a babe. It was soooo heartbreaking. I'm so sorry you are having to go through all of this, Sarah. We are praying hard for all of you. XO!
  20. Allie says

    March 15, 2011 at 2:47 pm

    Carsyn has an awesome mommy! I know somedays it stinks when your mind begins to worry about all of the what-ifs but keep your chin up and keep doing what you are doing. Everything you are doing now is going to help him so much in the long run.
  21. Natalie says

    March 15, 2011 at 2:46 pm

    Prayers are still with him and your family! He is a sweet boy and you are a wonderful mother to him. It is great you are getting him the help he needs, God will have His hand on Carsyn...I will keep on praying! Just stay strong for him Momma! You're doing a great job so far!
  22. marcip says

    March 15, 2011 at 2:24 pm

    Cute pictures! Glad to hear the appointment went well... keep looking up!
  23. Marci says

    March 15, 2011 at 2:18 pm

    Aww--thats the worst when they have to take blood (or give shots or anything that makes your baby cry) and theres nothing you can do about it! Seraphina had to get x-rays done on her hips the other day and they had to strap her down and she FREAKED out. The people in the waiting room could hear her crying :( But Carsyn is a trooper, I'm sure. Glad that you are getting some answers..but with more information always come more questions (funny how that is..) Seraphina just got put on Baclofen for her hypertonicity and she will be getting botox injections in the next couple of months to loosen her up more. Good luck and stay strong!
  24. Jessi says

    March 15, 2011 at 10:18 am

    I'm glad to hear the appointment went good. It's hard not knowing for another month, but I hope the time passes fast and there's not much stress on your family. He is so cute as always though.
  25. Buckeroomama says

    March 15, 2011 at 9:54 am

    Glad to hear the appointment went well. Praying for you and Carsyn and your family.
  26. Jessica says

    March 15, 2011 at 10:46 am

    Thanks so much for the update. I'm sure the wait will be hard, but it sounds like they're really working hard to find out what's going on with your little guy. Will send prayers of strength for you for the next month!
  27. Maddy says

    March 15, 2011 at 10:45 am

    I bet the wait is torturous, but April will be here in no time. In the meantime, I will keep Carsyn in my prayers. And I agree with Becky...all I see is a BEAUTIFUL baby boy!
  28. Susan says

    March 15, 2011 at 9:41 am

    Oh bless your heart!! I've been down that road with one of my sons. He is learning delayed and all else was normal. He also needed oxygen at birth. He's a healthy young man now. I'll be praying for you as you are testing and waiting for those results. That is truly the "hardest part"... He is just the morst gorgoeus baby!! Please keep us posted.
  29. Courtney K. says

    March 15, 2011 at 9:56 am

    Hopefully they give you guys some answers soon. I can't imagine the frustration and the pain you feel not knowing what is going on. You seem to be handling yourself well. Remember that we are ALL praying you and for him and your family. On a different note...the photos are absolutely beautiful. He is such a sweetheart!
  30. Ann says

    March 15, 2011 at 9:45 am

    I hope that the time moves quickly so you can have some answers. Many prayers coming your way!
  31. Amber says

    March 15, 2011 at 9:39 am

    Thanks so much for the update Sarah!! I am glad that the outcome will not make a difference in his therapy treatment program. I am sure that gives you a lot of peace and makes the waiting game more bearable. Blessings and prayers to you, sweet lady!!
  32. Candice says

    March 15, 2011 at 8:36 am

    The doctor sounds really positive about the whole thing. I would never think looking at the pictures that Carsyn's head is small - he looks just fine. And, like I mentioned before, my brother has CP and he's amazing. He's a lawyer, looks like a Ken doll, plays guitar - super awesome in every way and you'd never know he has CP. So even IF that's the case, it doesn't have to be this terrible thing. Hang in there! You're doing a great job. :)
  33. Robin says

    March 15, 2011 at 8:08 am

    Thanks for the update Sarah... it is great news that you received as far as him being just a bit delayed. I'm sure you're on edge until you get the MRI results back. Praying for great results and praying for you in the waiting time. My kids were all born with small heads and were below average (for whatever reason, I don't know). My oldest was diagnosed with IUGR while I was pregnant and they told me he would be tiny when he was born. I took great care of myself and was so confused, although I had preeclampsia toward the end. All that scare, then when he was born he was...7 lbs, 7oz and was fine. He continued this pattern of small head, normal body on through his first year. I can tell you know that his head size is normal looking now (it didn't really look odd before, it was just below normal) and he is HIGHLY intelligent for his age, constantly building things and I'm even looking into an Auto CAD program trying to satisfy his budding engineering skills. I guess all that to say that docs have certain guidelines of what's average, but just because something is below average now doesn't mean it will always be that way.
  34. Ashley Sisk says

    March 15, 2011 at 8:58 am

    I'm so proud of you and Carsyn - he's going to be fine regardless of what happens next. He has a family that loves him and I love that the doctor used the word delayed rather than behind. Your optimism is inspiring - I'll keep praying for ya!
  35. Life with Kaishon says

    March 15, 2011 at 8:10 am

    I am praying for your family. I know you are so worried. The thing is, when I look at him, all I see every time is a PERFECT baby. Praying that everything will turn out ok. I am sorry about the blood. Just thinking of that made tears slip from my eyes.
  36. Ambria D says

    March 15, 2011 at 12:05 am

    You guys have been in my thoughts lately. I'm hoping everything will turn out okay : ) Thank you for updating. He is such a sweet boy!
  37. kelly @ In Everything says

    March 14, 2011 at 11:01 pm

    Well, again, I am just soo thankful that you have these resources available to you all!!! First the therapy and exercises they taught you to do with Carsyn and now this Dr that is onboard with you, your concerns and helping Carsyn. Very glad for the diagnose that he's not cognitively delayed... sounds like you did receive good news there. But now we pray for your continued wait. He is just soo cute;) And you are such an observant and good mom;)
  38. CJ says

    March 14, 2011 at 10:14 pm

    Glad to hear you are on your way to getting answers...praying for you all, hes such a cutie :)
  39. Nessa says

    March 14, 2011 at 10:06 pm

    You keep being the amazing mama that you are - that is all he needs from you - and we will keep sending up our thoughts a prayers.
  40. Grumplestilskin says

    March 14, 2011 at 9:54 pm

    Reading along and hoping that you get the answers you need, and continue to get help, too.
  41. Mandy says

    March 14, 2011 at 9:46 pm

    Sending you love and hugs and support. You are doing the VERY best for that sweet boy. I'm glad things look as good as they do!
  42. Chari says

    March 14, 2011 at 9:28 pm

    Praying for you all! Sounds like you got a very good doctor though and he will figure it all out for you, that is a blessing right there!
  43. Kayla says

    March 14, 2011 at 9:26 pm

    You seem to be handling this very well. I know you've been wanting answers and help for him, so I'm glad you're starting to get that. Hugs!
  44. Stepping On Cheerios says

    March 14, 2011 at 9:14 pm

    Thinking of you and your handsome little man! As moms concerned for our babies, we all want answers... Relax and try not to think too hard.
  45. Summer Lamb says

    March 14, 2011 at 10:11 pm

    Glad you got some anwsers..I am praying for him!(((hugs)))
  46. Elissa says

    March 14, 2011 at 9:00 pm

    hey dear, i guess I didn't get an email update yet for the post, but thanks for letting me know! Sounds like a crazy but good day...so much that is unkown, but hopefully will be found out over the next several weeks. You are doing a good job momma, staying calm and loving that little precious boy. Thanks for keeping us updated as much as you are! My thoughts and prayers are with you all!
  47. WeeMasonMan's Mom says

    March 14, 2011 at 9:43 pm

    I always have to laugh when you apologize for the length of your posts because they never seem that long to me! Glad the appointment went very well. And he has a very good point - as good as "knowing" would be, that's not going to change your every day course of life very much. He'll still be the same baby, you'll still be the same Mommy, and the outcome will be the same, regardless of a diagnosis or not. You have already seen so much improvement with the few weeks of PT and OT and it's just gonna get better from here, I know it! Keeping you guys in my thoughts, as always!
  48. [email protected] Teacher Turned Mommy says

    March 14, 2011 at 8:38 pm

    sounds like you have found the strength and courage to deal with all that will come your way. I can understand the need for answers.
  49. alita says

    March 14, 2011 at 8:58 pm

    Focus on the positive as you are. The rest is in God's hands. You are a wonderful mother. I will keep your pookie in my heart and my prayers. HUGS!!! Alita
  50. Michelle says

    March 14, 2011 at 7:48 pm

    Big *HUGS* back to you! I'm so glad that everything went relatively well at Carsyn's appt today! Thankfully you'll be getting answers soon and you know that you're doing everything possible to help him. Great job!!!
  51. charmaine says

    March 14, 2011 at 7:43 pm

    Sending you hugs!!! You were so brave to hold him for the blood work, I can't imagine how that would've been. Praying for results after the MRI!!!!
  52. casey says

    March 14, 2011 at 7:24 pm

    Glad this was longer as I was hoping for a nice update so thanks for sharing it all! I'm glad to hear the positives in this appointment. Lots of things to hope for and I am SO happy to hear that they have scheduled an MRI and that the ball can get rolling there. Sorry it is so far off. I do pray that the Lord continues to pace you as you wait and gives you extra strength to care for Carsyn's special needs and for Dustyn as well. God Bless you Sarah! This is a challenge for sure but, you are really shining the light of Christ in all this. Many hugs!
  53. Meg :) says

    March 14, 2011 at 7:04 pm

    Sending YOU a great big hug!! Hang in there! You are in my prayers, girl. ;) It sounds like this doctor was much nicer? Hope things continue to go well ~ slowly but surely Carsyn will make it! Remember the Tortoise and the Hare... ;)
  54. Nicolasa says

    March 14, 2011 at 8:02 pm

    Sounds like you have a wonderful team working with Carsyn. You are such a good mom for getting him the help he needs. HUGS to YOU!
  55. Misty says

    March 14, 2011 at 6:52 pm

    Huge hug back! Praying praying praying for your little man.
  56. Summer Crosbie says

    March 14, 2011 at 6:49 pm

    You are such a great mom! You got me all teary eyed. Keep up the good work, carsyn will be in my thoughts and prayers.
  57. Jenn says

    March 14, 2011 at 6:48 pm

    Glad the appointment went well... no matter what ...Seize the Day girl... love on those babies and enjoy every minute! =) My blog is called Seizing My Day b/c my little man has had a huge medical journey as well... never a diagnosis... just many many tests, concerns, scares and worries... but in the end no "label"...(oh what I wouldn't give for a label!!!...I wanted one so I know I am doing the right things... ta know? *sigh*) anyway... He is exactly the way God made him and he is a blessing just the way he is!! =) and so is Carsyn! =) I hope your journey is less stressful than ours was... and that you find more answers than we did... and that even in the midst of stressful times you find joy and fun... it is amazing what fun can be had in the middle of stressful hospital testing!! =) I assume they will put him under for the MRI? That will be harder to watch than having blood drawn.. you will have the strength when you need it!! =) You will be in my prayers as often as I remember!! =) Hugs back to ya!!
  58. Rosie Grey says

    March 14, 2011 at 6:47 pm

    I think that doesn't sound to bad, and it's always good to be able to do something, that is, go on with the therapy! I'm so sorry you have to wait for the MRI again and I hope the time will past fast for you. Sending all my warmest wishes to you and your family! Hugs, Rosie
  59. Tracy says

    March 14, 2011 at 6:35 pm

    I'm sure the waiting game is torture and I'm glad to hear he is not far behind.... don't fret in that the waiting will not impact my prayers... they will be going strong the whole time!! Much love coming your way.
  60. Keli says

    March 14, 2011 at 7:16 pm

    Thoughts are with you guys!
  61. Suzette Mahoney says

    March 14, 2011 at 6:43 pm

    Oh my goodness. I love your attitude! That does seem like such a long time to wait. You are a great Mom and I will keep you + Carsyn on my prayer list. Please keep us posted and know that you are in my thoughts + prayers.
  62. Joni says

    March 14, 2011 at 6:33 pm

    Before Elijah was born, we were told that he was Down Syndrome. Of course, they were wrong, he did not, but as stressful as it was at first to deal with this news, only because I was afraid I wouldn't be the right person for such a big job, I knew immediately that I would love him NO MATTER WHAT. And I can tell that this is exactly how you feel. Whatever the outcome, I know you will be strong and love him no matter what. The scariest feeling to me is knowing that no matter what, this is not in our hands. My thoughts and prayers are with you. and yes, i stuck around for the entire story. I love hugs! :)

Welcome

I'm Sarah and I am the writer behind this blog. I love sharing recipes, DIY projects, photos and about my everyday life. I married my high school sweetheart Kenny. We have three boys and one baby girl - Dustyn, Carsyn, Prestyn, and Annelyn. Thanks for stopping by, can't wait to get to know you more. Read More…

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